What is the Doctors’ Independent Network?
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- A learned society of clinicians
- Run by doctors for the benefit of all
- Nationally organised - based in Surrey
- Non-profit making - charitable status
- Open to all clinicians with a computer interest
- An equal partner in a joint data venture with Industry
(CompuData Research Limited)
- Financially independent
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DIN members are encouraged to provide data to DIN which, through CompuData,
is made available to the Pharmaceutical industry for Pharmaco-epidemiological research.
Becoming a Data Provider substantially reduces the cost of DIN membership.
All profit gained from the sale of data supplied by members must, by the Constitution of DIN,
be returned to the membership, usually in the form of services.
Profits from data sales will be used to support development of specialised software
for users, postgraduate education and clinical audit.
These are expected to provide the means by which practising doctors will be encouraged
to improve their recording of clinical data.
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Who are the members?
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- Any working clinician can join DIN - data provision is not compulsory.
- Our Data Panel consists at present of 360 + Torex Health practices recruited almost entirely from the best data providers used in the original Meditel - CompuFile data scheme.
- The typical DIN panel member has generally had a clinical computing system in place for 5+ years and makes increasingly full use of it as general practice adapts to the demands of the new NHS.
- They are encouraged to express their health care communication needs, interests and concerns among their professional colleagues through the medium of the DIN Supervisory Board.
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Where are DIN members?
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The DIN panel is represented in every part of England, Scotland and Wales.
Furthest practice north is Orkney!
The membership is somewhat biased toward the south of England due to the location of
the core DIN activities in Surrey.
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How do they provide their data to DIN?
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- via DIN RAPID reports (For technical details see Appendix A)
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In Summary, DIN RAPID -
- Provides the GP with a greatly improved Torex Health compatible reports package designed for general practice use.
- Is optimised for simple quick extraction of data on a regular basis by modem. By default the extraction software keeps a record of the date of the last extraction and any subsequent extraction takes all the data added or changed since then.
- Is capable of carrying out automatic data downloads daily via modem directly onto the DIN database.
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DIN RAPID Reports has been tested by Torex for compatibility with its System 5 software and has been awarded third party accreditation.
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What safeguards does DIN apply to the data?
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For the patient:
DIN scrupulously follows the standards laid down by the Committee on Standards of Data Extraction (by organisations external to the practice) of the GPC. This means we extract only these patient identifiers:
- Sex
- Year of birth
- Postcode collection (minus space and last 3 characters) is being superseded by CACI socio-economic code collection, further improving confidentiality.
- Internal patient number (patient identifiable by donor practice only)
- Practice identity number (DIN-specific practice identification)
- All data is encrypted on-site before transmission.
For the data user:
DIN uses advanced extraction software which works directly on the data file.
(Other organisations use extraction programs, which rely on the index files to the practice’s data. These are known to have been frequently corrupted in the past).
A comprehensive series of data download trials have demonstrated the extreme robustness of this
system and its excellent reliability.
After transmission and reading into the DIN collector system, the data follows the same path
that it did under the original Meditel data collection regime. Pharmaco-epidemiological data is used for drug marketing and research, while the complete set of data is loaded into the DIN Deep Thought research system
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How do we measure data quality?
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DIN assesses data quality by individual GP using some of the principles of clinical audit.
We currently assess data quality on the following simple criteria :
- List size vs. volume of notes recorded
- List size vs. volume of drugs issued
- Percentage of drugs linked to coded reason for prescribing
- Proportion of acute to repeat prescriptions
- Visits and drugs prescribed entered on computer
- Proportion of ‘firm’ diagnoses vs. symptoms or signs
- Incidence of ‘marker’ read codes (e.g. a practice with all minor ailments
recorded but no recorded cases of appendicitis, MS or psychotic illness
would be considered atypical!)
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How do we ensure continued data quality?
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The DIN Board members have made use of their personal knowledge of the situation at the ‘sharp end’ of general practice to provide a practical solution.
Clinical audit is now an essential activity in General Practice. Compulsory postgraduate education leading to re-accreditation seems inevitable within the next few years.
DIN therefore is producing an audit package which allows the GP to do the following:
- carry out clinical audit on PCG performance criteria assisted by DIN.
- audit his personal performance against either his own or pre-defined nationally accepted targets using clinical ratios
- see how he compares with his partners and other GP’s (without identifying them)
This can make PCG based clinical governance feasible for DIN data providers.
The GP can set his own clinical standards and can measure changes in practice activity
month by month.
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How do we reimburse our members for their data?
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Indirectly
DIN is prepared in principle to pay members directly for their data but would prefer
to use any income from market research on the data to provide members with goods and
services i.e. quality clinical personal and practice clinical audits,
PCG-related information, personal development plans, add-on software etc.
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What services does DIN provide for members?
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The FrontDesk Appointments System – written by experts and developed by GP’s and receptionists,
all System 5 users and arguable the best available Torex appointments package.
Tested and third party accredited by Torex Health for System 5 it is provided and supported by DIN at a major discount to its members.
Data Feedback Software
- Free to data-providing practices. The software runs under Windows on any 386 (or more powerful)
machine, allowing practices to analyse their own data in a variety of ways including number of prescriptions issued, number of patients treated, number of days of therapy prescribed, number of prescriptions per patient per year, length of continuous therapy, average daily dose prescribed, intervals between prescriptions. Practices can choose to receive feedback of any three of the following: Angina prophylaxis, HRT, Hypertension, Lipid lowering drugs, Respiratory, Oral contraceptives, Systemic NSAIDs, Ulcer healing drugs.
Safescript™ - World Standard Drug Database
- A special discount to data-providing members.
Unlike all other existing drug data-bases and electronic books,
SafeScript™ is specifically designed for integration into coded (e.g. Read, ICD9/10)
clinical record systems in hospitals, pharmacies and general practice.
Such integration permits active flagging of interactions and contraindications and problems
in renal failure, liver disease and pregnancy and lactation.
In addition, flagging of drug ingredients associated with specified indications and
side effects is available. SafeScript™ achieves its active flagging through use of an
unique comprehensive prescribing thesaurus which contains standardised terms related
to the whole prescribing knowledge domain, including Read Codes version 1, 2 and 3,
standard drug form terms, 7000 ingredients cross referenced to Read Codes where possible,
standard dosage regimens, unlimited length interactive messages by Dr Ivan Stockley,
pharmacological actions, liver disease, renal failure, pregnancy, lactation, patient
messages and prescriber messages.
Safescript Interactive allows browsing of the drug database, and addition to patient
information on diseases and current medication and the active checking of proposed new
medication for possible interactions and contraindications.
Safescript Interactive needs a PC running Windows with 4 Mb RAM and 12 Mb hard disk space.
DIN runs 'Deep Thought', a national clinical database of sufficient quality to allow
original clinical research to be carried out on its members’ data.
It also intends to run a nation wide communications network exclusively for clinical purposes,
with links to the NHS Network.
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APPENDIX A
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DIN data collection - Technical Details
- Data collection is by modem, using dial-out from the practice only.
- The DIN software disables the modem port at both the beginning and end of each data transmission to ensure correct dial-out settings.
- Data connections are scheduled automatically using native UNIX ‘cron’ ‘mail’ and ‘uucp’ software.
- Practice systems normally dial out between midnight and 5.30 am, each connection lasting about 2-3 minutes on average.
- They connect to a bank of modems securely located at the DIN Office, using one of two telephone numbers, which are all directly connected to a single UNIX server.
- This DIN collection server has no other local or wide-area network connections active at the time of user connection.
- The amount of collected data averages 30 Kbytes per connection. Connection time per day varies between 30 seconds and five minutes depending on connection speed and line quality. Longer catch-up transmissions may occasionally occur to fill any gaps previous transmission sessions.
- DIN extraction software updates may occasionally be passed back to the connecting system during normal daily connection sessions.
- There are no circumstances in which dial-in access can be obtained to a data provider’s clinical system using the DIN modem.
- Data collection and transmission takes place entirely within the UNIX environment and has no means whatever of establishing a connection with the NHS network at either the practice level or at the central DIN collecting level.
- DIN’s method of data collection has been approved by the NHS Information Authority for use in practices connected to the NHS Network. This approval gives recognition to our network’s excellent intrinsic patient and doctor-centred security and confidentiality.
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